One of the most difficult conversations families face is discussing hospice care with a loved one. At ViaQuest Hospice, we understand this hospice conversation feels overwhelming—it’s emotional, complex, and touches on topics many families have never discussed openly.
The good news? You don’t have to navigate this hospice conversation alone, and there are gentle, respectful ways to approach this important topic that can bring families closer together rather than create conflict.
Why timely hospice conversations matter
Having the hospice conversation with your loved one isn’t about giving up hope—it’s about ensuring your loved one has a voice in their care decisions. According to the National Institute on Aging, people who participate in their own care decisions experience better outcomes and greater peace of mind.
Studies show people who discuss hospice care early experience better outcomes and less stress—especially in families across Ohio, Indiana, and Pennsylvania. Many families wait until a medical crisis to discuss hospice, but earlier conversations allow time for thoughtful decision-making and emotional processing. At ViaQuest Hospice, we often hear families say they wish they had started these hospice conversations sooner—when everyone could participate fully and express their wishes clearly.
How to prepare for the hospice conversation
Choose the right time and place
Find a quiet, comfortable setting where you won’t be interrupted. Avoid having this hospice conversation during stressful moments, medical appointments, or when your loved one is experiencing pain or discomfort.
Gather information first
Before the hospice conversation, educate yourself about hospice care. Understanding the basics helps you answer questions and address concerns. Consider downloading resources like our Complete Guide to Hospice Care to have specific information available.
Include the right people
Think about who should be present for the hospice conversation. Sometimes it’s just you and your loved one; other times, including siblings, spouses, or close friends can be helpful. Follow your loved one’s preferences about who they want involved.
How to start the hospice conversation
Begin with care and love
Start by expressing your love and commitment to supporting their wishes. You might say something like: “I love you, and I want to make sure we’re doing everything possible to keep you comfortable and honor what’s most important to you.”
Ask open-ended questions
Rather than jumping straight into hospice discussion, explore their feelings about their current care. Questions like these can open the hospice conversation naturally:
- “How are you feeling about your current treatments?”
- “What’s most important to you right now?”
- “Have you thought about what kind of care you’d want if treatments stop helping?”
Listen more than you talk
Give your loved one space to express their fears, hopes, and preferences. According to The Conversation Project, most people want to talk about their end-of-life preferences but don’t know how to bring it up.
Practical tips for hospice care discussions
When families in Ohio, Indiana, and Pennsylvania approach hospice conversations, addressing common concerns directly often helps:
“Hospice means giving up”
Explain that hospice care focuses on living as fully as possible. Share that hospice patients often experience better symptom management and can participate more actively in family life when they’re not dealing with the side effects of aggressive treatments.
“I’m not ready to die”
Acknowledge their feelings and emphasize that hospice is about living well, not dying quickly. Many hospice patients live months longer than expected and report better quality of life. Share that hospice care can begin when someone has a six-month prognosis, but people often receive care much longer.
“What will happen to me?”
Describe how hospice care works practically. Explain that most hospice care happens at home with regular visits from a caring team. Emphasize that they’ll never be alone and that pain and symptom management are hospice specialties.
“I don’t want to be a burden”
Reassure them that caring for family is an act of love, not a burden. Explain how hospice teams support the whole family, providing respite care and emotional support that actually reduces caregiver stress.
Making it a two-way hospice conversation
The best hospice conversations happen when family members also share their feelings and concerns. Consider saying things like:
- “I’m scared too, but I want to make sure you get the best possible care”
- “We can take this one step at a time and see how it goes”
- “What matters most to me is that you’re comfortable and we have time together”
When to involve healthcare providers
Sometimes it helps to include your loved one’s doctor, nurse, or a hospice representative in the hospice conversation. Healthcare providers can:
- Explain the medical aspects of hospice eligibility
- Address specific clinical questions about hospice care
- Provide objective information about treatment options
- Help facilitate difficult hospice conversations
According to the Office of Inspector General, involving healthcare professionals in hospice discussions leads to better-informed family decisions. At ViaQuest Hospice, our team members are experienced in having these sensitive hospice conversations and can provide information without pressure, allowing families to make decisions in their own time.
What if they say no to hospice care?
If your loved one isn’t ready to consider hospice, that’s okay. Respect their wishes while keeping the door open for future hospice conversations. You might say: “I understand this feels overwhelming. Can we talk about hospice care again in a few weeks?”
Sometimes people need time to process the idea of hospice care. Continue to focus on their comfort and quality of life, and revisit the hospice conversation as circumstances change.
Moving forward with hospice care
Once your loved one is open to learning more about hospice, the next steps in your hospice conversation become easier. You can:
- Schedule an information meeting with a ViaQuest Hospice team
- Discuss practical matters like advance directives
- Talk with other family members about the hospice care decision
Trusted hospice conversations in Ohio, Indiana, and Pennsylvania
At ViaQuest Hospice, we serve families throughout Ohio, Indiana, and Pennsylvania with compassionate guidance during these challenging hospice conversations. Our care liaisons are specially trained to help families navigate hospice discussions with sensitivity and respect.
If you’re struggling with how to approach this hospice conversation, call us at 855.289.1722. We can provide guidance, resources, and even participate in family meetings to help explain hospice care and answer questions about how to talk to family about hospice care.
Remember, the most important thing is approaching this hospice conversation with love, patience, and respect for your loved one’s feelings and wishes. Serving Ohio, Indiana, and Pennsylvania families with trusted hospice conversations—we’re here to support you every step of the way.
