Thinking about end-of-life care is one of the most challenging, yet profound, conversations we can have. It requires courage and honesty, but it is also an incredible gift to yourself and your loved ones. Advance care planning ensures that your voice is heard and your values are respected, even if you can no longer speak for yourself.
Despite its importance, planning for future medical care is something many people postpone. In fact, data from the National Institute on Aging shows that only about one-third of adults in the U.S. have completed an advance directive. This simple act of planning can prevent confusion and distress for your family during an already difficult time, replacing uncertainty with clarity and peace.
This guide will walk you through the essential documents—like living wills and healthcare power of attorney—and explain how to make your end-of-life wishes known, ensuring every moment is lived with dignity and intention.
What Are Advance Directives?
Advance directives are legal documents that allow you to spell out your decisions about end-of-life care ahead of time. They give you a way to tell your family and healthcare providers what kind of medical treatment you would or would not want. There are two primary types of advance directives:
- Living Will: This document outlines your preferences for specific medical treatments, such as mechanical ventilation, tube feeding, or resuscitation, if you are terminally ill or permanently unconscious.
- Healthcare Power of Attorney (HPOA): Also known as a “durable power of attorney for health care” or a “health care proxy,” this document allows you to name a person (an “agent” or “proxy”) to make medical decisions on your behalf if you cannot.
Understanding Key End-of-Life Documents
While a living will and HPOA form the foundation of advance care planning, other documents serve specific, critical purposes for those with serious illnesses.
Healthcare Power of Attorney (HPOA)
Choosing your healthcare agent is a decision rooted in trust. This person should not only understand your values but also be a strong advocate who can ensure your wishes are followed. They will be your voice, so it is vital to have open and honest conversations with them about your preferences long before their guidance is needed.
Do Not Resuscitate (DNR) Orders
A DNR is a specific medical order written by a doctor. It instructs healthcare providers not to perform cardiopulmonary resuscitation (CPR) if your breathing stops or your heart stops beating. A DNR is typically for individuals who are terminally ill or have a medical condition where CPR would be ineffective or cause more harm than good. It does not affect other medical treatments you may receive.
POLST/MOLST Forms for Seriously Ill Patients
For individuals with a serious or advanced illness, a Physician Orders for Life-Sustaining Treatment (POLST) form—sometimes called Medical Orders for Life-Sustaining Treatment (MOLST)—is a critical tool. Unlike a living will, a POLST is an actionable medical order signed by your doctor. It translates your wishes into clear instructions for emergency personnel and other providers regarding interventions like CPR, intubation, and feeding tubes.
Research published in the Journal of the American Geriatrics Society confirms that POLST forms are significantly more effective at ensuring a patient’s treatment preferences are honored, reducing the likelihood of unwanted hospitalizations and interventions.
The Conversation is as Important as the Document
Advance care planning is much more than filling out paperwork. The National Hospice and Palliative Care Organization (NHPCO) emphasizes that it is an ongoing process centered on conversations with your loved ones and healthcare team. These discussions ensure everyone understands what matters most to you, reducing the burden on your family to make difficult decisions in a crisis.
Start by reflecting on your values. What does a good quality of life mean to you? What are your fears or hopes regarding medical treatment? Sharing these thoughts with your chosen healthcare agent and family is the heart of effective planning.
How ViaQuest Hospice Can Help
Navigating these decisions can feel overwhelming, but you don’t have to do it alone. Hospice interdisciplinary teams, especially social workers, play a crucial role in facilitating advance care planning. As highlighted in a recent study in the Journal of Palliative Medicine, social workers are experts at guiding families through these sensitive conversations, helping complete state-specific forms, and ensuring patient autonomy is always the top priority.
At ViaQuest Hospice, our social workers provide compassionate support to help you and your family understand your options, document your wishes, and find peace of mind. We also ensure these documents are correctly shared with your care team so your voice is always heard.
State-Specific Resources
Advance directive laws vary by state. It is important to use forms that are legally valid where you live. Here are direct links to resources for Ohio, Indiana, and Pennsylvania:
- Ohio: Ohio Hospital Association Advance Directives Packet
- Indiana: Indiana State Department of Health Advance Directives Resource Center
- Pennsylvania: Pennsylvania Department of Aging Advance Health Care Directives
Once completed, give copies of your documents to your healthcare agent, your doctor, and your local hospital. Keep the original in a safe but accessible place where your loved ones can find it.
If you and your family are navigating these important decisions, our compassionate social workers are here to guide you. For help with advance care planning, call ViaQuest Hospice at 855.289.1722. You can also download our Complete Guide to Hospice Care for more comprehensive information.
Advance care planning is an act of love—for yourself and for those you care about most. By making your wishes clear, you provide a roadmap that honors your life and values, ensuring that your final chapter is written on your own terms.
Key Takeaways
- Advance directives, including living wills and a healthcare power of attorney, allow you to control your future medical decisions and ensure your wishes are honored.
- Open and honest conversations with your family and healthcare agent are just as vital as the legal documents themselves.
- POLST forms are actionable medical orders for those with serious illness that provide clear, immediate instructions to healthcare providers.
